HoneyBloat

I just want to understand, if your service is free and you quit your job it really doesn’t matter how cheap the flights are if you have zero coming in. How does this work? Then maybe you can get a little more credibility.

I am currently battling neurologists for finding a diagnosis for my 18 year old son. He has a paraspinal tumor that shows on MRI but not on CT. We have been told in over 20+ years they have seen nothing like this.

We are still trying to get a diagnosis, inconclusive twice now. The tumor is not a candidate for resection due to erector muscles. I have follow up appointments at two different clinics, but no one can take us further until we get a diagnosis. He just had another biopsy yesterday morning...

MRI was done do to a car accident in November ‘18 and the tumor was found then. February laminectomy performed as well as first biopsy. We were told, “we don’t know what this is, but you’re not going to die” with repeat MRI in May. August 20 was repeat MRI, tumor has grown and changed shape.

How has your experience been with healthcare? Did you have to advocate and fight for the best care? Do you have any recommendations for us starting out this fight?