Handbag_Lady

That's super-related in most other places. What an interesting outlook. SO glad you got out.

Are there any other genetic issues in your family?

My husband is soon going to be on the recipient organ list. What did your number 1 caretaker do that made your life easier or better? We're both feeling like we have NO idea what we are doing with the SDI paperwork and work notes and things, I feel like I should be doing more to help my husband.

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Any advice to someone who made it through to those just starting? Thank you and happy recovery!

Holy shit. You brave, brave soul. I totally admire you for getting yourself out of there. And bravo to those who helped.

Thank you. We are also GREAT on the healthcare with our work plan, it is just the time off from work payments that I am stuck on due to the hospital stays and days off with the testing. So many tests.

YES! We're new so we just met the support team Friday! THANK YOU for making me feel like I am not alone.