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HKYK165 karma

Which section has the best construction? Genuinely curious, because I have no idea.

HKYK8 karma

Hey my girlfriend has Ehler-Danlos! She also has occasional gastroparesis, though not as badly as you (no GJ tube). I think it's really cool that someone with E-D is doing an AMA.

Do you tend to have a lot of joint pain and issues with dislocation? My girlfriend has some issues with that, and I'm curious if that's typical.

HKYK2 karma

She's not a redditor, actually. But I'll point her to /r/ehlersdanlos - she likes to at least browse it sometimes.

She's pretty informed about EDS, and she probably could have answered that question herself - I was more just curious from my own perspective. She's actually applying for graduate programs in genetic counselling!

What do you do to manage the pain, if you don't mind me asking? My girlfriend has a lot of trouble with pain management.