Gurty00770 karma2019-07-07 12:26:42 UTC
Are you BH4 responsive or do you have classical PKU? Have you tried Kuvan yet?
My son has PKU and is on Kuvan. With this medication he is able to have a completely normal diet. If you haven’t yet tried it, try and get some to test your responsiveness to it. It truely is a life changing drug for those that it works on.
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