Also a bit of an anomaly according to doctors. While I have severe hemophilia (<0.1% factor 8 present in my blood) I've been experiencing an annual average of 8 bleeding incidences for close to a decade now. Admittedly, this number has gone down significantly since I got out of high school (28 y/o in 3 weeks) as I played soccer my whole life--heavily against the recommendations of my doctors. I was a stubborn kid, but I loved it so to me it was worth the risk & extra treatment. I've had my factor levels tested annually since I was a child and I am still fully severe, however I don't exhibit severe bleeding. I guess I'm lucky in that department. I don't miss the days of massive bleeding episodes dragging on for weeks & being stuck laid up or in the hospital. I once broke my ankle in multiple places (yes, playing soccer) & it resulted in a 3 week hospital stay to reset the ankle & manage pain. The perks are an extremely high pain tolerance & the option of a handicap parking pass (still don't have one, not trying to be a scumbag hemophiliac).
GriefLedger1 karma
Also a bit of an anomaly according to doctors. While I have severe hemophilia (<0.1% factor 8 present in my blood) I've been experiencing an annual average of 8 bleeding incidences for close to a decade now. Admittedly, this number has gone down significantly since I got out of high school (28 y/o in 3 weeks) as I played soccer my whole life--heavily against the recommendations of my doctors. I was a stubborn kid, but I loved it so to me it was worth the risk & extra treatment. I've had my factor levels tested annually since I was a child and I am still fully severe, however I don't exhibit severe bleeding. I guess I'm lucky in that department. I don't miss the days of massive bleeding episodes dragging on for weeks & being stuck laid up or in the hospital. I once broke my ankle in multiple places (yes, playing soccer) & it resulted in a 3 week hospital stay to reset the ankle & manage pain. The perks are an extremely high pain tolerance & the option of a handicap parking pass (still don't have one, not trying to be a scumbag hemophiliac).
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