Frankyfrankyfranky
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Frankyfrankyfranky2 karma
did they specifically test lp (a)? my first doctor/hospital didnt. Even after all that exciting stuff with the vfib and heart bypass etc. It was only after i went to a different cardiologist that they did. Many cardiologists do not test this routinely. If i was you i would check that one specifically.
good news about the rest ! Sounds like it was just bad luck. Or lp (a) ;-)
Frankyfrankyfranky2 karma
good on you for the public outreach. i like talking about it as well.
Frankyfrankyfranky1 karma
Hi,
Thanks for the great AMA. What would be your thoughts on prevention, once heart failure starts setting in ? My wife is 40 and was diagnosed in the early stages. She is thin, non smoker, non drinker and has a masters in nutritional science. Ideopathic ! We also exercise regularly. she now takes various medicines that unfortunately lower her already low blood pressure and make her crazy tired.
More exercise ? Low intensity ? High intensity ? I had a 6 way heart bypass and now have an implanted ICD as well after 2 episodes of v-fib. Fortunately my heart muscle is crazy strong, especially after the revascularization. We call ourselves the cardio family !
Frankyfrankyfranky1 karma
have you checked your lp(a) ? thats lipoprotein(a). i also have a defib and had ventricular fibrillation. Also young. It seems sky high levels of lp(a) were a cause. have you had any afib? Pvcs?
Frankyfrankyfranky7 karma
such great infos
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