FishCandlesnConfetti

K: I actually wrote about what it was like growing up the other day on the confetti skin blog, here's the link: http://confettiskin.com/wp/2013/04/11/life-with-ichthyosis-judging-by-appearances/

People stare less now that I'm on medication, but I do still get weird looks. People used to stare a lot when it was more prominent. I'd get all sorts of rude comments or unsolicited advice, or criticism for being sunburned, or whatever. Looking that different, people just seem to forget their manners really fast!

K: As much fun as you can imagine! Primary/elementary was worse though in some ways, because little kids are really cruel and don't understand those who look different.

I had other issues with school too - because I can't sweat, I overheat and can get heatstroke really easily. Phys Ed in summer just didn't happen a lot of the time, and I had to spend a lot of time in the shade or inside when others were outside.

J: My significant other is my wife, Rachel. We've been married 13 years now.

R: Yup. I feel very lucky to have a supportive family, co-workers, and colleagues at FIRST and elsewhere.

J: We knew it would come up sooner or later. Yes, we're married longer than gay marriage has been legal in any US state and we have biological kids together. I carried them, she's affected. I'm sure you can work out what happened.