FA1THL3SS

My wife suffered from UC/Crohn's also. Her story is very similar to yours in that her condition was severely advanced before it was detected/treatment began. She also had to have surgery to remove her colon and had an ileostomy created.

She was also @ 3 months pregnant when she was diagnosed which impacted the treatment options. She too tried steroids and remicade, both unsuccessfully. By the time she was taken to surgery she was receiving 3 units of blood a day and passing it through. She hovered near death for over a month before they performed what turned out to be a life-saving surgery.

What I would like to ask is how large of an incision did they make in your abdomen for your surgery?

My wife had a 14 inch incision running from her sternum to just above her pubic mound that had to be held closed by 10 gauge steel cable/staples.

We affectionately refer to her scarring as her "christmas tree".

My wife's surgery was in August and the baby made it through the surgery fine. Then when she was at home she was on a combination of pain killers/antidepressants and woke up one night and had delivered the baby (@ 4.5 months-second week of Sept.). By the time she became aware enough of what was going on and got her mother awake and 911 called, it was too late and our son had died.

At the time we were just engaged and she was staying with her mother so that she could help her recover while I continued to work (no FMLA for fiances). I always feel like there could have been something I could have done if I had been there but... hindsight is 20/20.

I'm told he had my eyes and nose.

I would also like to add that I am glad you are doing better and wish the best for you in your future.