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EverSoSlightlyObtuse8 karma

OP, how severe is your PKU? Also, did/do you ever attend any of the PKU get-togethers? (Summer camps and so forth?) And, has PKU effected your mental acuity, general development, formal learning? My sister, who strictly adheres to her diet, has severe ADD which doctors have said was exacerbated by her PKU.

EverSoSlightlyObtuse3 karma

Absolutely! Your husband sounds great. When my sister was pregnant, the doctors actually had her eating some protein! My nephew (PKU free) was able to metabolize it for her in utero. It was really cool. She became a hopeless cheese addict during those 9 months. She got to eat ice cream, too. Mac n' cheese was her favorite, though! (And mine, too! Was able to share my favorite food with her for the first time!)

EverSoSlightlyObtuse3 karma

I remember my parents ordering huge amounts of "special food" in batches for my sister. It was expensive and not always so tasty. She ate a lot of baby food (apricots, peaches) by adding them to other fruits like bananas and strawberries. She was able to eat a "beer" bread that my mom made using Miller Genuine Draft High Life.

EverSoSlightlyObtuse2 karma

Not my AMA and not 100% certain of the rules, but my sister is exactly as you described. Her ADD is horrendous to the point where she cannot drive a car but she cannot take ADD medication because of appetite suppressing side effects. She is a really tiny person (4'11"), so drinking her "milk" (PKU shake) daily is already difficult enough.

EverSoSlightlyObtuse2 karma

Have you had children? Or planning to? If so, have you or would you check to see if your husband/partner was a PKU carrier?