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Enragedocelot948 karma

This is the exact reason why when I was in the hospital getting a bone marrow transplant, the only way I could survive everyday was making dark humor jokes.

My favorite being: How do you get gum out of your hair? cancer

Enragedocelot12 karma

The operation could be two ways that I know, either you are sedated and they stick a few needles in your back and extract bone marrow or I believe you can sit for 8 hours with both arms hooked to IVs as your blood goes through some machine. Honestly I only heard the second one from my sister.

If anything I would do the first one, you are sore fore a few days and the procedure you aren't even awake for. I hear people complain all the time about whether they should sign up because they are scared of the pain. But honestly, you are saving someone's life and if you are able to do it, you are a wonderful person!

Enragedocelot11 karma

My sophomore year of high school, so March 2014, I got mono and pneumonia pretty seriously. The first thing they noticed was I had very low blood counts which is why they said oh you should get to the ER immediately. Few months later, I am feeling great, fully recovered but my doctor kept saying you counts are still awfully low. He kept digging into it, many blood tests and bone marrow biopsies later, they discovered that I had this rare syndrome.

Enragedocelot10 karma

favorite cereal?

Enragedocelot8 karma

Sorry for formatting, typing on my phone. But after my two times I was readmitted, I was finally back at home. Restrictions being, no physical contact with any humans outside the house and no humans other than family in the house.

The chemo caused me to lose all of my energy, literally all of it. I felt like complete shit 24/7. The chemo causes about a hundred side effects. Some of which includes no appetite, throwing up every morning (which I managed to throw off because I went on steroids). I lost all tastebuds but that didn't happen till later.

My dad kept me moving a little bit by making me walk around the block with him and the dog at least a few times a week. I lost basically all my muscle in my legs. I couldn't go up the steps two at a time, which is a weird thing to think about. But when you have no muscle you have nothing to help you up, so it was kept to one step at a time.

Major dry mouth was one of the worst side effects, on your own you're supposed to be drinking about 2-2.5 liters of water everyday. but with the dry mouth, every time I felt slight discomfort I would drink. I also developed this horrid mucous-y feeling in my throat making me not want to talk at all or eat.

Not sure if any of that was helpful. But for recovering more, it was just basically lay low for your 9 months of isolation. I got random spurts of energy once the whether got warm again so that was nice. But it's been a full year and I still don't have my full capacity of energy back. I was planning on doing sports but never could due to lack of energy.

Hopefully that answered it, if not, keep asking away