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Empty_Sandwich1265 karma

haha yeah I just mentioned that in another answer. Its slightly similar but very mild compared to an AP outbreak. I actually feel like that reaction from BA might be what stops the AP symptoms.

Empty_Sandwich1047 karma

Quite bad at its peak. As a teenager I just forced myself to deal with it and showered every few days. But before my diagnosis late last year it had actually gone away for over a year, but mid last year it came back and as always was the worst it had ever been by far.

Between mid last year when it came back and early this year when I found BA I might have showered once a month on average, if that. I tried taking short quick showers, sponge bathing, misting, etc. But there isn't any difference between a long shower or a short one or any of that, exposure to water is exposure to water and whatever I tried lead to hours of agony.

So yeah once a month I'd take a really long shower and really thoroughly clean myself and just deal with the several hours of post shower agonizing gravelly prickles all over my body. But once a month was all I could handle of that.

I know showering once a month sounds pretty bad but try and imagine what it's like to be truly terrified of taking a shower.

Empty_Sandwich647 karma

Yeah I remember as a kid my upper lip would get the prickling when I drank water so I guess that's why at some point I kind of adapted to drinking water so that it didn't touch my lips. When I drink out of a glass I kinda do that chugging thing where I just pour it in to my throat rather than sipping, if that makes sense. The inside of my mouth doesn't react.

Empty_Sandwich372 karma

I was 26 and that was only at the start of this year.

You bet I did, it was the first time I'd felt normal. First time I'd ever enjoyed a shower and found it relaxing like everyone else instead of dreading it and being terrified of it. Not having to feel ashamed and avoiding my SO because of my hygiene. Being able to go swimming with friends and have a water pistol fight with my young brothers like a normal ass person. It just feels so great to feel normal.

Empty_Sandwich348 karma