EhlersDanlosSucks44 karma2020-10-27 16:20:16 UTC
I sleep less than two hours a night, in 15-20 minute segments. I'm often awake for several days at a time without any at all. I had one sleep study that was said to be "useless" because I didn't sleep. Do you see this often? Any suggestions? (I have Ehlers-Danlos and Chiari.)
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EhlersDanlosSucks7 karma2020-09-22 16:03:48 UTC
I came to ask the same thing. My 18 year had a legal name change earlier this year, two days before SS offices closed. Now he can't get his card, driver's license, insurance, or register to vote.
EhlersDanlosSucks4 karma2020-10-27 20:07:50 UTC
Thank you! Yes, POTS came with the EDS. I moved recently and will definitely ask about this when I get set up with a new med crew here.
EhlersDanlosSucks2 karma2020-09-22 16:08:13 UTC
I was hoping so but they said otherwise when I called in. But the person seemed to not be paying attention whatsoever. I will try again, thank you!!
EhlersDanlosSucks2 karma2020-09-22 16:14:00 UTC
That is helpful! Thanks!
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