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EhlersDanlosSucks44 karma

I sleep less than two hours a night, in 15-20 minute segments. I'm often awake for several days at a time without any at all. I had one sleep study that was said to be "useless" because I didn't sleep. Do you see this often? Any suggestions? (I have Ehlers-Danlos and Chiari.)

EhlersDanlosSucks7 karma

I came to ask the same thing. My 18 year had a legal name change earlier this year, two days before SS offices closed. Now he can't get his card, driver's license, insurance, or register to vote.

EhlersDanlosSucks4 karma

Thank you! Yes, POTS came with the EDS. I moved recently and will definitely ask about this when I get set up with a new med crew here.

EhlersDanlosSucks2 karma

I was hoping so but they said otherwise when I called in. But the person seemed to not be paying attention whatsoever. I will try again, thank you!!

EhlersDanlosSucks2 karma

That is helpful! Thanks!