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ECZerockk46 karma

Hey,

  1. You mentioned that many Children with SMA die at a young age. Does their chances for survival always remain low or is there a threshold of if you reach this age you are likely to survive longer?

  2. When she visits friends in their homes is it awkward for her to play at all with her friends?

  3. I am someone who is adamant I want Children. I don't feel however I could deal with the stress or complications with a disability. Did you always know you would be able to do something like this or is it something that everyone thinks they couldn't do then in the situation overwhelming love for their child changes them?

ECZerockk39 karma

Another question regarding 3). May be a hard one; If you and your wife fell pregnant again and you found out the child had SMA from an early stage of the pregnancy, would you consider abortion being as raising one child is already hard enough. (don't answer if its too much of a sensitive topic)

ECZerockk15 karma

Thank you for your answers. I sincerely hope you and your family have many awesome years to come!