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Derpy_lolwut4 karma

Fellow 21 year old with EDS and Asperger's here! What type of EDS is yours and what symptoms do you experience? I'm lucky enough to not be in a wheelchair, but I have a couple heart defects, I'm already developing arthritis, and I'm incapable of physical labor or heavy lifting. On top of being mentally ill and autistic, things can get really depressing for me. Weed tends to help me through a lot of the chronic pain and anxiety, personally :~)

Derpy_lolwut4 karma

Jeez, that is really awful, I'm so sorry for everything you go through :( even as restricted as I am, I can't imagine dealing with dislocations on a daily basis and losing so much of your ability to simply function on your own. Its terrifying knowing I'll be there someday too. It's good that you at least have hobbies, PC gaming has been my go to for many years now. I have to say I admire your courage for going out to bars and doing karaoke, that's something I could never dream of doing with my social anxieties. More often than not, my autism and mental illness is the dominant force in my life rather than my EDS. Its inspiring to see that there are other people out there, my age, with my same spattering of disabilities, who have it even rougher, keeping a smile on their face and making the most of their lives. You're awesome, keep it up!

On another note, what sort of autism do you have and how does it impact your life? I'm fairly high functioning for aspergers, but I'm still a weirdo and I definitely have my moments where it takes over and I'm subject to my every impulse.

Derpy_lolwut3 karma

Yikes man, that's a whole lot of suffering :( sounds like you've got it quite a bit worse than me. Thankfully I only have classical EDS and I'm not too severe, my problems are mostly my joints, my mitral valve has a prolapse (twinsies!), and I've got a dilated aorta. The worst factor for me is that my shoulders, wrists, hands and knees are already slowly, but steadily, getting worse and more painful. What's the most physical you can get? Are you able to do things like hike and ride a bike, or are you more often than not bound to your wheelchair?

Derpy_lolwut2 karma

Yeah, aspergers can be pretty dang strange, and I developed a lot of mental issues from a childhood of being constantly bullied and singled out for my odd behaviour, and always knowing / feeling like something was wrong with me, but never having a proper diagnosis. When I was finally diagnosed, my school tried to force my parents to make me take drugs to 'correct' my behaviour. Later on in my school career I chose to move to an independent study focused charter school that only met 2-3 times a week because I'd been being very badly beaten and bullied at my middle school, and in freshman year at my school, I was in a smallish accident involving a staircase and a cart full of metal chairs (great story, but I won't go into detail) and afterwards, when speaking with him about it in his office, I told him I was alright this time but because of my EDS it could have been really bad. A few days later, I wake up around noon after a late night gaming sesh, walk out into the kitchen for some water, and the motherfucker is in in my living room trying to persuade my mom to disenroll me (and my sisters) so the school isnt liable for me getting hurt because of my EDS.

On the subject of gaming, I'd love to! what games do you play? I'm mostly a pubg player right now but I play a lot of other games too. I'll send you my discord info as soon as I figure out how to PM you on here, lol.