Creepella_the_third
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Creepella_the_third20 karma
I too have it. My daughter is 7 and I give her probiotics, fish oil, and vitamin D daily. I breastfed her until she was 2. I also do watchful waiting when she has an earache or sore throat so she is given a chance to get better without antibiotics. We eat a whole foods flexatarian diet. She is super healthy and has no signs of the disease yet. I just researched studies of what seemed to make people more susceptible to IBD and did the opposite. I hope the doctor chimes in for you, but I thought I would reply. Also with only one parent affected they have a 93% of never getting the disease.
ETA: Since I have adopted this lifestyle and quit smoking 9 years ago I have noticed my remissions last years as opposed to months at a time.
Creepella_the_third6 karma
People can do both. Many people with autoimmune disease take methotrexate with a biologic. It helps prevent building antibodies to the biologic itself over time and helps the biologic work better. I dont know your disease specifically but I have crohns disease and I have personally used both an immunsuppresant and a biologic at the same time. The biologic did what the immunesuppresant couldnt and saved my colon from being removed. It also closed up all my fistulas in days.
Creepella_the_third5 karma
Well, remicade worked miracles, but it gave me drug induced lupus after about a year, which went away thankfully when I stopped the remicade. I then went on steroids and increased my immune suppressant and found remission for a few more years. Then I started flaring this summer. Currently I my disease is under control using cannabis, low dose naltrexone (another treatment for autoimmune disease but its not a an immune suppresant), and The Specific Carbohydrate Diet. I will be weaning off the imuran over the next 6 months to give my liver a break, and hopefully maintain remission with just the cannabis, LDN, and SCD diet. Should I flare terribly along the way, I wont hesitate to use a biologic again, but I am saving that for emergency measures because these drugs are great, but I noticed eventually they all stop being effective. Its a delicate balance because on one hand I dont want to run out of options, but on the other hand I have almost died from this disease a couple times a long the way.
I have friends with lupus and other rheumatoid arthritis that say the Autoimmune Protocol diet helped their pain and inflammation. Although I am not sure what you can eat with your specific condition.
ETA: Drug induced lupus is a super rare side effect, so dont take that as you shouldnt try it. Many people are given their lives back with biologic therapy. As I said, if I got super sick again, I would try another biologic.
Creepella_the_third4 karma
Are they going to try biologics soon, like remicade or stelara?
Creepella_the_third36 karma
I think you are wonderful John Roberts. The telephone bit you do is wonderful. I love Linda's characterand she is my favourite on the show. She is the best TV mom ever. My favourite line is "Mommy doesnt get drunk, she just has fun! Crackers......" Do you channel your own mother for the character?
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