Corinabm

Ernie is the best dog! He does help me relax, but he unfortunately isn’t allowed in my room because it need to be free of dust, hair and dander.

https://i.imgur.com/nUGTsTn.jpg

My PD nephrologist is Dr. Zhang and the surgeon I spoke with at my transplant eval appointment was Dr. Maley. I saw Dr. McCauley for about 5 years before I went on dialysis.

Hi! I’ll PM you with a form you can fill out and send. Where are you located?

It literally felt like nothing for years, if I hadn’t had a sinus infection, gone to the doctor and been told my blood pressure was extremely high, I wonder if I would have found out I had iga.

Once my kidney function was down to like 5-10% I started feel god awful, I have no appetite, I felt like I had concrete as shoes and led instead of blood running through my veins. I was so fatigued, I had the shakes... my hands would not stop shaking. By the time I went into the hospital and they ran blood tests they say I was extremely anemic and had to get a couple of blood transfusions.

After the first dialysis treatment I felt a hell of a lot better. I like actually wanted to eat. Just felt so so much better.

Dialysis only gives back 10% of kidney function and I take a boatload of medications, overall I feel ok except I’m very fatigued all the time.

My favorite nurses in the hospital were the ones that cares about me and got to know me. There were a few who clearly were just doing a job, but there was a few other who were so sweet and that made SUCH a big difference for me while I was going through all that.

My biggest gripe with my disease is that it’s “invisible” so unless people know I’m sick there’s no way of telling, I look 100% normal to people who don’t know me. That can get a bit frustrating.

The -/+ doesn’t matter for transplant as long as I can find an O donor!