CodeBrownPT

Is it just me or is this AMA ridiculous?

I understand the issues with cost and that's certainly something worth discussing, but with the wide array of medications available for auto-immune conditions like AS, there is no reason to only be taking NSAIDs. Patients rejecting medication for their conditions is pushing us back to the 50s and 60s when massive joint deformities and huge loss of function were the norm.

I don't really feel sorry for someone who is now facing the consequences of their own actions.

There are far more inexpensive options such as DMARDs.

Have you tried mirror therapy or graded motor imagery? Desensitizing therapy?

Make sure they take medication as it's the primary way to reduce the long term effects of the condition.

I don't know what part of the world you're in but find a good physiotherapist who specializes/treats TMJ syndromes.

Most cases (even severe like your daughters) resolve very well with the right treatment. It entails manual therapy on the upper neck and jaw, as well as progressive exercise and soft tissue work. Some people benefit from a night splint.

Only the absolute extreme chronic issues should ever need a surgery.