Circlesmirk

How many doctors did you have to go through before you got your diagnosis?

This is one of the hardest things for my girlfriend (still working on securing her official diagnosis). During an episode, her mental capacity and her memory are so terrible that doctors don't take her seriously. They think that she's faking or just being difficult. She's been through a bunch of doctors, and even the neurologist that she was referred to wouldn't take her seriously.

When she's not having an episode they don't believe that anything is wrong, and when she is she doesn't have the capacity to properly express what she's experiencing. It's incredibly frustrating.

Yeah, she's part of your facebook group too. Luckily she hasn't had an episode in about 15 months now, so we're hoping she might be on the tail end. Her episodes are much shorter than yours too (usually 7-10 days) so while it's frustrating, it's not as debilitating for her.

Even without a formal diagnosis, it's nice to finally be able to put a name to it and to hear from others who are dealing with the same thing.