CURE_HD

You posted in my AMA?

1. This was the only thing that made me cry about the whole ordeal because I did always see myself as a great dad. I originally stated out right no, because I did not want to put a kid through what my sisters and I went through. My current girlfriend has inspired me to consider other alternatives like adoption. Or what my older sister has expressed interest in which is basically you pay a bunch of money to have invetro done on yourself to ensure the eggs do not carry the marker. They do all of this with out telling you if you do or do not carry the gene. I am sure they can do the same thing for sperm.

2. It was easier to consider when it was my uncle, but thinking about my mom is completely different. I can't ever see myself being okay with doing that with my mom, but at the same time if it truly was what she wanted who am I to stop her.

3. Yes. My mom is Irish Catholic so she has 8 brothers and sisters. 6 of them remain at risk, all around their mid 40s, my mom was the youngest. All of my cousins remain at risk as well. Thats includes the younger ones, the grandchildren of my late uncle Steve. Since my cousin never tested before he had kids and he was at a 50% chance, that makes his kids odds 25% at the moment. If you do not carry the disease, you don't pass it on. It doesn't skip generations.

4. I use to want a big house, a yard, good job, nice car, got to my 9-5, save for retirement. I don't really want that anymore. I just want to be happy. I want to move around. Do things, see people, do people, see things. Be responsible, but be carefree.

edit. Thanks for the kindwords and your questions.

woohoo science and shit

I have a nicer beard.

Thank you! Are you involved with UCSD at all? Amazing work coming out of there and wouldn't my luck have it my at risk uncle is from SD. And wouldn't it be my luck that he has been involved with studies there as an at risk patient in the past. And wouldn't it be my luck his wife is an architect or designer(not sure which) for the science labs even! I am really hoping next year to be involved in a study with the new DNA drugs.