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BrownSugarSandwich7 karma

My fiancee's brother has kidney disease. He was so sick and when he finally went to the hospital, they we're functioning 30% and 0%. Some kind of genetic disorder. Because he got sick, his paternal family was tested and his dad and sister both have it, and will likely need a transplant in the future. His was just very aggressive due to poor lifestyle choices. His mother gave up a kidney because he would not have survived the wait list. He's doing well and will need another kidney in about 4 years. Transplants are an amazing thing. I told him about an artificial kidney (internal lifetime functionality) I read about and he was quite excited. Would an artificial kidney be of help in your situation?

BrownSugarSandwich3 karma

I have a family member with the chronic version of this, CIPD. He caught a cold one day and spent about 3 years in a wheelchair as a result. They've found a balance of drugs that keep his immune system depressed enough that his myelin isn't being attacked anymore and doesn't make him sleep like a house hippo. It's been... 5 years now I think, and he's just started to be able to walk again. I asked him what it was like one day, and he said it didn't hurt, but it felt like having horrible pins and needles that never goes away but instead of being in a small area it's his entire body. I think he qualified for some experimental treatment program but I would have to ask again.
Best wishes to your wife for a speedy recovery!
Whoops, forgot my question.
If this ends up causing a relapse, would she consider, or be qualified for, experimental treatments?