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BiologicalWizard53 karma

Oh my god. I really hope this comment doesn't stay as buried as Domingo is.

BiologicalWizard8 karma

I used to work for BioMarin. They have a couple cutting edge treatments that can be heavily subsidized for folks outside the US. Have you tried getting in contact with them?

BiologicalWizard5 karma

You absolutely should. I believe Kuvan is one of them. It allows you to digest regular proteins.