BigBearMedic

How do you feel about the general stigma associated with CRPS and all forms of RSD/Regional Pain Syndromes as far as opiod method treatments? I too suffer from CRPS following a crush injury to my leg that involved a fasciotomy. I still work, but the amount of TCA/Neurotin I am on is brutal, I only take pain medicine at night, I have tried to get into the study for the ketamine treatment program, but I am currently on blood thinners for an unrelated issues, which means I cannot be treated with it =(

I wish you the best of luck,from one suffered to another. Fuck this disease. Everyday is agony, burning fucking agony. I hate it for you, and I hate it for me.

I'm a CRPS/RSD patient as well. This is what I'm on.

I'm on a massive dose of TCA, a massive dose(2600mg of neurotin 3x daily), Mobic, as well as Xarelto(for a blood clot) I'm also on Opana 8mg IR, Oxycotin 80mg ER, Oxycodone 30mg IR(if needed, however I think I've taken it 3 times in a year) as well as ativan and phennergan/zofran for nausea. Basically, the standard treatment seems to be "Throw narcotics at it and make them a zombie so they can't complain". There is no effective treatment really, nothing fucking works. It's like having shingles 24/7/365 except much worse burning pain. I've actually been on fire due to my job, and CRPS hurts about as bad as a second degree burn, except deeper, and much worse. And all the fucking time. It's brutal. A lot of CRPS patients commit suicide due to the pain.