ArdnasPry2 karma2020-07-24 15:02:04 UTC
Thanks so much. I also left a message on the nurse voice mail at your office. As I mentioned, I am a grant writer and you asked for support with your app.
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ArdnasPry1 karma2020-07-24 15:16:38 UTC
I am not sure what you do for a living, but I want to encourage you. If it is indeed, gone, then you will find ways to adapt. (Unless you are a sommelier or barista, or work in the natural gas industry...)
Using essential oils, I have made a focused effort to re-connect odors with visual and emotional memory. It seems to be effective, sometimes. I am also using this experience as a contemplative practice and trying to gain insights about physical attachments. In this, I realized that my premorbid keen sense of smell was also wrapped up somewhat in my sense of self. Unusual, perhaps, but it does make sense that a primal sense might be connected to consciousness.
Blessings to you. If you cannot smell, you will not cease to be. Take care.
ArdnasPry1 karma2020-07-24 14:12:53 UTC
Thank you for this AMA and for your work in this area. Dysosmia is a super-interesting phenomenon! Unfortunately, it has been with me since Spring 2019. Forgive the (long) length of this post, but I want to share as much as is possible, in case it is helpful to others, too.
Background: I am a 60-year old white female vegetarian bicyclist in good health, 5' tall and 107 pounds. I had enjoyed a very keen sense of smell and memory for fragrance throughout my life (easily duplicating complex spice combinations from food years later, for example.) I also now know that my visual and emotional memory had strong associations with odors as well.)
I have taken 3-6-9 oil since 1998, a multivitamin and some vitamin d--all in moderate doses, and probiotics since 2016, post-surgery for carpal tunner and IV antibiotics. As I approached menopause in my mid-50s, I put on weight by eating too much "healthy food," the same kinds of which I had eaten my whole adult life (organic oils, fruits, veggies, and nuts, with limited dairy.) In April 2018, I switched to a low fat, higher-protein diet with a good deal of Greek yogurt--and lost 29 pounds over 11 months. Symptoms of dysnomia started in Spring 2019.
I first became aware of smell changes after my hubby and I returned to our rental house in Massachusetts after having been away for a week. (Throughout 30+ years of marriage, I was the one who had a better sense of smell.) We walked in and he found the smell of mildew/mold to be overwhelming--I smelled nothing. We had the landlord deal with the issue and thought no more of it, but I continued to have unusual perceptions or absence of smell. At first, everything smelled like plain Greek yogurt--I thought I was just tired of it. I noticed that ginger--which I ate every day--was also gone. Then summer basil was dull, and peppermint smelled like horseradish. Floral scents stayed mostly intact--roses, jasmine--and citrus was evidently still satisfying because my husband noted that I started putting lime on just about every savory dish.)
By the end of the summer, we knew that we were going to leave Massachusetts, and I hoped that this was just a temporary reaction to the mold. We traveled throughout New England and the mid-Atlantic in the fall, and South Carolina in the winter. I noticed the absence of perception of nearly every common bark/woodsy scent, with continued disgust of dairy fats. I lost alliums and citrus faded. I started researching and found "Fifth Sense, in the UK," and read about loss related to Parkinson's' s/Alzheimers, tumors, and viruses. Then I moved back to my home in the Poconos, just as COVID-19 hit.
During the fall/winter, I interacted with my doctor of 30 years, a homeopathic MD/internist in the greater Philly area. We tried several remedies with no change. I realized that I probably needed to see an ENT, and just then, COVID-19-related anosmia entered the picture. Next, the Poconos locked down. And so, I waited...
Reflecting on the situation, in the new COVID-19 context, previous information came to memory:
Could we have had COVID-19 as early as spring 2019?
I started participating in Project Baseline in May 2020 and had a swab 5/30/2020 with Negative results. I went to see the ENT about 4 weeks ago. A nasal endoscopy found no anomalies--"healthy, no masses..." and I am scheduled for an MRI.
Just before I went to the ENT, I read something about how probiotics may not be a catch-all solution, how determining the right ones is an individual unknown, and how gut bacteria and CNS are related. So I stopped it just before the appointment.
I also reported back to my homeopath that my sinuses were healthy. Three weeks ago, I took one dose of camphora 200c, and I started having glimpses of smell. I took a second dose 2 weeks ago, and a third two days ago. I continue to have glimpses of odor--the woods after rain, for example.
So that is my story. The ending is not clear, but I am giving it another few weeks before I go for the MRI.
All the best, and thanks again.
I just realized that I did not ask anything. What do you think is going on?
ArdnasPry1 karma2020-07-24 15:19:06 UTC
And it could be unrelated, I understand. Thanks again for your responses.
ArdnasPry1 karma2020-07-24 15:02:53 UTC
Correct. My exposure to the coughing student was in January 2019.
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