AbysmalMoose5 karma2020-07-27 01:20:55 UTC
You've got to fight for yourself. My sister spent years going from doctor to doctor about severe pain and doctor after doctor told her to suck it up and it was just period pain. She did her own research, diagnosed herself with endometriosis, then went from doctor to doctor till one was willing to test her (had to cut her open to see if she was right). Sure enough, she nailed it.
You have to be your own advocate. If you aren't being heard, find someone else who will listen.
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AbysmalMoose2 karma2020-09-15 02:20:07 UTC
As someone who will probably need a kidney in the future (stupid genetic diseases), I just want to say you're awesome! It's comforting to know there are selfless people out there.
I'm curious, in the US if you're a live donor and end up needing a kidney yourself, you're immediately moved to the top of the list. Does Canada do anything similar?
AbysmalMoose2 karma2020-01-19 17:41:11 UTC
Oh man, potassium is a bitch. With all the dietary restrictions, that is the hardest for me. Sodium wasn't too hard to figure out, but potassium seems to be abundant in everything and isn't required on nutritional labels!
AbysmalMoose2 karma2020-01-19 18:02:20 UTC
It really varies by person and pathology. I have a chronic kidney disease and can tell you that, for me, I had pretty much no symptoms that I recognized as odd until I hit late stage 3 failure... and then the dam broke. The problem is the kidneys are pretty good at dealing with declining functionality. Eventually they get overwhelmed, but bless their little kidney hearts, they do their best to hide it.
AbysmalMoose2 karma2020-01-19 17:52:49 UTC
So can I ask a question? I'm 32 and was just diagnosed with IgA Nephropathy. I'm in stage 4 but not quite bad enough for a transplant yet. Doc says I have about a 70% chance of needing one in the next 10 years. Since the issue is autoimmune, the donated kidney would eventually be affected as well (unless i can go into remission, which we're working on). So say I get a new kidney and it lasts me 10 years; how many times can someone get a new transplant? Do they eventually just say "you already had two, no more"? Is the first kidney easier to get than the next?
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