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3Dobby344 karma

Hey, fellow stoma pooper here. I've only had mine for about two years after having a section of my dysfunctional colon removed (your problem sounds way worse, but hopefully you're getting through it okay). My biggest struggle is remembering to use the toilet every day/overcoming my laziness and doing what I have to do. What's yours?

3Dobby33 karma

Do you have one tube that you've always used or do you have to replace it every so often?

3Dobby32 karma

Hmm, that's interesting. I don't have to keep my tube in all the time, I just put it in when I flush (that's what I call the nightly water ritual) and take it out when I'm done. I do have to prod the stoma with a metal rod every time, though, because the outermost skin tries to heal.

3Dobby32 karma

I'm coming up on my two year anniversary with my stoma and with my girlfriend. I got both of them at the same age that you are now, and she doesn't care at all about it. In fact, it's the subject of a lot of jokes between me and her and a ton of my friends as well. It's something that's necessary for our (you and I) well-being and, at least in my experience, everyone recognizes that and respects that, even if they don't fully understand what it is or does. If I could give you one tip, I would say don't stress it. The people that care about it aren't worth it, and the people that are worth it don't care.

3Dobby32 karma

In my experience with my stoma, I can go swimming as long as I have a thing to cover it (I don't know what it's called but it's essentially a big square of thin tape that I put over the entire area), but I don't need to do anything special for showering. My surgeon said that he created my stoma with a sort of one way valve type thing, which may be why I don't have to worry very much.