[LIVE INTERVIEW] with Jacob Haendel, survivor of locked-in syndrome, and the only documented case of recovery from stage 4 progressive leukoencephalopthy
E3: We are live for the second time! Here is the link for part 2: https://www.youtube.com/watch?v=BldjoPQ8tl0
Edit2: We've taken our first break. We will be back at 8 pm EST to answer questions live
Edit1: WE ARE LIVE NOW!
He was referred to as a 'vegetable'.
Jacob Haendel, a talented 28-year-old chef from the affluent suburbs of Boston, developed stage 4 toxic acute progressive leukoencephalopathy (TAPL) from smoking heroin. TAPL is a fatal disease that damages your brain's white matter - cells that make a substance called myelin. This protects your nerves and losing it can make it harder for you to move, think, and feel sensations. Within a month he could no longer walk. Within 4 months he could no longer eat. Within seven months, he was locked-in: a comatose state you are conscious through. He is the only documented case to recover from this disease and is here to do an epic, live AMA.
We will be going live from 12 - 1:30 pm EST and 8 - 9:30 pm EST today! In an effort to stay organized, we will be reading the most upvoted questions so please take a look at the comment section to see if your question has been asked, and upvote that so it gets to the top! All answers will be transcribed here in the comment section underneath the question!
Part 1: https://youtu.be/6JIKPZhPK14
If you want to hear more about Jacob's story to hell and back, you can check out the interview from yesterday here: https://anchor.fm/themountainsweclimb