IamA ALS patient diagnosed @ 26 years old
I have Familial ALS. My grandmother was diagnosed when I was a child, my mother was diagnosed when I was in high school, and I was diagnosed 6 months ago. I know how this disease progresses. Let the fight begin!
My ALS ice bucket challenge is sorta going viral and I just want to continue the conversation of why it's important to me, my family and entire ALS community. You can find the video here: