I Have a Rare Pancreatic Disorder That Was So Bad I Had a Feeding Tube for Three Years. I’m Also a Chronic Pain Patient in Recovery From Addiction and Now I Make Videos on YouTube About My Life Experiences AMA!
Proof Picture Of Identity: https://imgur.com/mgqaiTB
Medical History Proof: Submitted to Moderators Privately
MY (SHORT) STORY
My name is Danielle and like the title says, I'm a chronic pain patient in recovery from addiction and I have a small YouTube channel. In 2013 I was diagnosed with Sphincter of Oddi Dysfunction which is a rare pancreatic disorder . It was so bad that I had a feeding tube that bypassed my stomach and I did not eat food for three years. I also have a history of Chronic Pancreatitis and Gastroparesis. Plus, I've dealt with spinal problems due to degenerative disc disease requiring surgery twice.
Unfortunately for me, addiction runs in my family, my brother had died of a drug overdose at age 20, and being exposed to opiates throughout my early 20s due to my chronic illness, I ended up addicted to my painkiller medication. I took my addiction to my medication many steps too far until I was using heroin. In 2020 it became clear that I had to stop using opiates and over the last few years I really worked hard to deal with not only my physical pain, but my emotional pain as well.
My YouTube Channel
Today, I live a much healthier life, and I made a YouTube Channel (youtube.com/@intentionallymyself) to discuss my struggles with mental health, the day I found out my brother died, what I learned about his death and my struggles with chronic pain.
It's my hope that by being candid and honest about my experiences with these topics that others can not feel as alone as they once did. It's really cliche to say, "if it helps one person then it's worth it," and I don't know if that's true, but I am passionate about these topics and want to share what has helped me overcome so many hurdles so that others at least know they're not alone in their journey.
Additionally, I don't know if YouTube will ever be a full time career for me, it really is just a passion project of mine. Especially since I was banned from Google Adsense (YouTube's AD program) over 15 years ago when I created a Carrie Underwood fan site and clicked on all my own adverts earning me a lifetime ban. Which, if you ask me is the silliest possible reason to be banned from that program, but I was a ridiculous 18 year old.
I have many. videos planned for the future and when I run out of personal topics I plan to do deep dives/documentary style videos on things that interest me, like the Sackler Family, Big Pharma, Mental Health Inaccessibility in the USA, Wealth Inequality, etc. etc.
My Most Recent Video
The video I'm most excited about and recommend you watch is my video on Chronic pain titled "Is Chronic Pain In Your Head? Psychosomatic Pain Explained (& My Story)"
Video Link: https://youtu.be/-oHaaY5IwFk
This video takes the viewer through a journey of awesome medical science filtered through my lived experiences to show you just how accurate it is to say that chronic pain is in your head, but how WRONG anyone would be to use that language to discredit you while also really getting into the nitty gritty of what the term psychosomatic pain means.I think all too often people hear what doctors have to say about psychosomatic pain and blow it off. It is my hope that by providing the science through the lens of the patient perspective that others might be able relate to the experience and gain some knowledge that allows them to have more agency over their chronic pain. Perhaps it's a bit idealistic, but I do feel like I haven't seen the patient perspective in this way online and I'm simply creating the content I wish existed for me back when I first started dealing with my chronic illness and pain.
In this video, I talk about the therapist that called me out on my bullshit, how I begrudgingly headed their warning and how that ultimately saved my life. Additionally, I share my personal journey through addiction, chronic pain, and PTSD, and how I've managed to overcome these challenges and find a path to recovery. Throughout my life, I've always been someone who takes risks and gambles in various areas. However, when it came to my own well-being, I came to the realization that I couldn't afford to take such chances. I also talk about how despite this understanding, I still found myself pushing my limits and testing the boundaries of my recovery and what that looked like.
The Day I Found out my Brother Died | Coping With Loss (The Effects of Grief Series Part I)
(Trigger Warning: Discussion of Overdose & Death)
Video Link: https://youtu.be/-9bmwGPRWyk
This video is on of my most personal ones. In this one I take you through the day I found out my brother died. It was easily the hardest day of my life. Sibling loss awareness is a topic that is close to my heart and if you are dealing with a similar loss, I hope you can find comfort in knowing you are not alone.
In this video I take the time to share how my brother's death changed me. Surviving sibling loss isn't easy and the effects of grief are endless. The loss of my brother led me down a path of self-destruction. Personally, I don't think sibling loss isn't talked about enough and being a survivor of it, I hope that my insights resonates with others who have lost a loved one.Additionally, I share a piece of my writing in this video titled, "The Moral Of My Story," where I express empathy for my past self and embrace the joy I have today. It is my hope that my story serves as a potent message of hope and healing for anyone navigating the turbulent waters of grief, addiction, or any other life challenges.
With that said, my name is Danielle and I am not signing off just yet! I will be here answering questions throughout the day! So, ASK ME ANYTHING!